Thursday, May 26, 2011

a little thing called "Mood"

Let me just start out by saying thank you to my dear friend (you know who you are) for calling me up and taking me out last night.  It was so nice to be able to get out of the house by myself just to do something 'fun'.  Alan and I continue to be so very thankful for friends and family who have not forgotten us in the busyness of life and have kept reaching out to us the past few weeks.

Anyone who has suffered through the loss of someone close can testify to the eventual darkness that begins to set in and surround you.  The initial shock wears off and while you have no choice but to try to return to 'normal'-things will not be as they were before your loss.  The reality of our loss is settling in pretty heavily with me this week.  There have been hardly any moments of happiness.  I mostly have had to face the overwhelming experience of deep despair and depression-a place I have never been before.  My conscious mind would rather not have to experience what I am at the moment but the conscious mind has no control.  Just this morning I am overwhelmed with tears and feel like I could cry for a completely unrelated reason.

Shortly after Braden's passing, we received a nice letter and book in the mail from a local couple (our age) who had unexpectedly lost their own nine month old in 2009.  Alan and I have separately picked it up to start reading it.  The name of the book is "A Grace Disguised" How the Soul Grows Through Loss by Jerry Sittser.  Jerry lost his mother, wife, and one of his daughters in a tragic car accident and in this book he helps the reader understand what it's like to experience loss in light of one's faith.  In reading his book I am able to identify many similar feelings and thoughts in my own journey.  I appreciate his depth and honesty about the human race.  

He made some points in the beginning of the book that really resonated with me. Ironically this week there was a similar post shared on the Proverbs 31 blog about loss and our human tendency to compare our losses with one another.  I appreciate his thoughts as he poses the question "Is it really useful to decide whose losses are worse?"  The context of the question is our habit of comparing our losses with one another and humanly determining on our own there are differing degrees of pain.  For example, some are severely disabled from accidents while others die.  Or someone goes through the pain of a divorce, or abuse in some form.  He goes on to say this:

"Catastrophic loss of whatever kind is always bad, only bad in different ways.  It is impossible to quantify and to compare.  The very attempt we often make in quantifying losses only exacerbates the loss by driving us to two unhealthy extremes.  On the one hand, those coming out on the losing end of the comparison are deprived of the validation they need to identify and experience the loss for the bad thing it is.  They sometimes feel like the little boy who scratched his finger but cried too hard to receive much sympathy.  Their loss is dismissed as unworthy of attention and recognition.  On the other hand, those coming out on the winning end convince themselves that no one has suffered as much as they have, that no one will ever understand them, and that no one can offer lasting help.  They are the ultimate victims.  So they indulge themselves with their pain and gain a strange kind of pleasure in their misery.  Whose loss is worse?  The question begs the point.  Each experience of loss is unique, each painful in its own way, each as bad as everyone else's but also different."
 I am not the kind of person that wants to sit at home in self pity nor am I the kind of person who desires any greater attention for my loss.  However, like most people having no choice to travel this journey I completely appreciate not having to travel my journey alone.  Alan has also recently made a comment to me about how it becomes incredibly significant to have others 'invest' in our journey with us.  What does it mean to be fully invested in someone's journey of loss?  It means to just be available and be fully present in our lives.  We understand the heart and know that words will never make us experience healing of any kind.  Healing is only something that God can do in us.  We don't want people in our lives keeping a 'safe' distance out of fear of not knowing what to say.  The reality is that we don't need anyone to say anything but just be in our lives walking beside us. 

Alan and I have both individually and as a married couple had to walk several roads of loss in our lives.  I know that the difficult situations I've had to go through have given me a greater depth as a person I would have never attained otherwise.  I think my challenge is always my attitude while in the middle of it all.  If you believe you are a follower of Christ, isn't our intent to allow God to make us more like Him?  I believe that's why he allows us to experience tragedy in life-to mold us and make us more like Jesus.  We will never know our Lord or share in His sufferings apart from having to go through some small share of that in our own lives.  Our suffering will never compare to what He did for us on the cross.  As a human though, having to endure is not always easy.  My faith is being challenged in many ways and I'm doing my best to take it one day at a time and I'm thankful for friends to help me in my journey.


Monday, May 23, 2011

The Answer is No

I am so appreciative of everyone's patience (if you are following my blog entries).  Last week was extremely difficult for me both emotionally and physically on top of the daily busy-ness that defines our family's schedule. 

After completing a four day class in Cranial Sacral Therapy in mid-May, my body went through a major detox for almost six days-I felt physically horrible and wasn't able to eat much.  Just as I was on the 'mend' I came down with a small head cold.  Thankfully the boys were never sick.

Last Monday was the first day that I was home alone for the first time since Braden's death knowing that family wouldn't be coming over and I wouldn't be 'busy' going places.  My heart has started the painful emotional process of the grieving.  Braden brought so much 'life' to my heart while he was here at home with me.  The house felt so empty with everyone gone to school and work.  Until now I have been too busy and not really felt emotionally ready to go through Braden's books and toys.  I'm sure part of leaving his belongings around is my subconscious way of self comforting having small small pieces left here of him.  It's been difficult not to feel many feelings of regret as his mother.  I regret being so busy caring for my other kids or attending to more 'administrative' details for him and Alex that I neglected to spend real, quality time with Braden.  Sure he had a personal care attendant helping me out with him but it pains my heart beyond words to know that she was able to share many daily life moments with him that I did not.  I am completely secure in knowing that he loved me with all his heart.  I am comforted in knowing that his first complete sentence was "Mommy I love you!". 

I was also made aware last week through the loving support of friends that not only do I need to work through post traumatic stress but that I'm holding anger subconsciously.  I can honestly say that while I don't have feelings of anger, my mind has a lot of angry thoughts.  I am struggling to make mental peace with knowing that his shunt failure was supernaturally rare.  Braden did not have classical shunt failure signs and symptoms that were obvious to us.  Additionally, his surgeon said a shunt failure leading to death within hours is extremely rare and if that's not enough-I found out two weeks ago in talking to his pediatrician that the company who manufactures his shunt has had absolutely NO reports of ANY problems or failures including fatalities.  Braden is their first fatality on that particular shunt.  It brought both Alan and I to a place last week where the utter lack of control in life was so obvious. 

We are not angry at God but feel disappointment and discouragement with God.  Especially knowing that many people were praying for him, including us and our miracle never came.  Upon further reflection last week it occurred to me that God also said 'No' to prayers lifted up prior to Braden's birth when we had to deal with the difficult discovery of his hydrocephalus.  I think it's been fair to say for both Alan and me that God has not made himself known to us personally as "Healer". 

I think Braden's untimely death just seems to underscore how much we don't have control in our own lives.  You see Braden was not a planned child for us and it meant big adjustment in our lives which we welcomed.  But then we had the news that he was not going to be a 'healthy' child.  Then toward the end of my pregnancy we set a date for his birth only to experience that yet again the timing was not up to us.  Braden did not arrive on this Earth according to man's planning and scheduling.  Despite the special care and love he received and the amazing progress he was having he died.  Yet again a real smack of the reality in life that we are not in control. 

I have also been touched by the few people who have graciously given financial gifts to support Alex going to therapy camp in July.  Our deadline to have the money in is JUNE 20.  Some have passed word to me that they plan to give and I am so appreciative.  So far I am aware that out of our need for $8000 we have $250 already sent in for donations.  We have a ways to go but I know that God has a plan for Alex to go to camp.  I am hoping to give God another chance in showing me that healing is possible in our family if not for Braden for his brother Alex.  Alexander's brain was affected by a lack of oxygen at birth that has contributed to dysfunctional and pathological reflex patterns.  His biggest issue right now is like a giant mountain hindering a life with incredible potential.  He is incredibly smart and bright.  I know for myself I need to hear God saying "Yes" right now with all that I'm going through.

Thank you for investing in our journey friends.

Love Lisa

Monday, May 16, 2011

So the Need Continues........

As everyone continues to ask the question "So how are the boys doing?" (since Braden's death), my response is that they do need help.  Our immediate focus has been on obtaining more intensive help for Alex given his Aspergers diagnosis and an increased intensity in his emotional responses since our trauma occurred in March.

We have the opportunity to get him the intensive intervention he needs through the Svetlana Masgutova Educational Institute this July here in Minnesota.  However, in order for us to get him the help he desperately needs we need financial support of many family and friends to get him to the Family Conference.  Unfortunately the cost of the camp is not covered by medical insurance.  But the blessing in our family's trauma has been that in sharing Alex's life story of constant struggle and challenge with the Bridge to Healing Foundation in Florida, they have graciously offered to MATCH ALL DONATIONS DOLLAR FOR DOLLAR up to $3,500!  Bridge to Healing Foundation is a 501c3 organization and will give all donors a tax deductible receipt for contributions made on Alex's behalf. 

This is somewhat bittersweet for me as both Braden and Alex's mom.  You see, when Alex was in second grade he was going through a horrific year at school and medication trials or traditional OT therapies commonly used with autistic kids were not working and we were at the end of our 'rope'.  I cried out to God for help on Alex's behalf and shortly thereafter we began a new direction in treatment with a wonderful Christian woman who had been training under Dr. Masgutova.  We began to see immediate improvements with Alex.  However, because Alex's underlying neurological issues are intensive, the work we have done a few times a month has not been intensive enough for him to make the kind of forward progress one should expect.  It was my dream at the outset of our introduction to the MNRI work to someday have Alex meet Svetlana face to face and that dream came true for us this past February.

Dr. Masgutova came to a clinic here in Bloomington, Minnesota and spent thirty minutes doing a private assessment on Alex.  Not knowing anything of his birth or life history she basically told me his life's story through her work.  I felt my jaw could have hit the floor!  For example, she knew that he had been in a long labor and suffered oxygen loss at birth (yes-I was there).  She also could tell how much that along with other things have really made life an incredibly difficult challenge for him and told us he needs to come to Family Conference this summer.  Dr. Masgutova also did an assessment on Braden.  She gave me so much hope for him-telling me based on his responses how bright and intelligent he was despite his hydrocephalus and other brain issues.

You see already knowing about how much the MNRI has started to help Alex I immediately pursued it with Braden right after he was born and I attribute the incredible gains he made (against what doctors predicted) to the MNRI work we did with Braden.  I just want to give Alex that same chance that Braden had with this work.

It is our sincere hope that as everyone has a desire to know how we are and to offer practical ways to support us that you would consider making a donation for Alex.  I will be honest without giving much detail but we are at a tipping point with Alex and as a mom I'm not about to lose another child because finances have kept me from getting him what he needs.  Donations in any amount ($15, $25, $50) would be so appreciated.  Checks can be mailed to:

Bridge to Healing Foundation, Inc
18037 SE Heritage Drive
Tequesta, Fl  33469
*Designate for Alex Redding MNRI*
Or online donations can be made through Pay Pal:
  1. Sign on to your own personal PayPal account
  2. Click the Send Money button
  3. Click the Personal tab and select the Gift option
  4. Enter BTHGroup@yahoo.com as the email address to receive the money
  5. Enter Amount
  6. click Continue button
  7. In the Email to recipient Subject line: Enter Donation
  8. In the Email to recipient Message:  Enter Alex Redding as the person you are making the donation for and enter your (the donor's) name and address.
  9. click Send Money button
Since the Family Conference starts in July, we are under a big time crunch to raise the money by June 20th.  Please contact us directly by phone or email if you have any questions.  We would greatly welcome them at this time.


redding@usfamily.net


Lisa